Accepting My Disability

If I had to pin down when I accepted my disability, I couldn’t say, because it took me a long time to realize what was happening to me and to force myself out of denial once I did.  There were usually comparisons or excuses like:  I’d only passed out/blacked out X number of times in X amount…

Dr. He-Who-Must-Not-Be-Named and My Amazing New Robot Legs

I have gotten so incredibly lucky in having found such a wonderful new rheumatologist (who humbly requested to remain anonymous, thus the name).  He just “gets” what’s going on with me.  That’s not an easy task.  He also understands EDS in general, which isn’t something I can say about any other rheumatologist I’ve seen, and I’ve seen quite…

Bob is for Awesome

It isn’t easy being married to a honey badger, but this guy handles it well and then some (at least most of the time).  I like to tease him and give him a hard time because that is the nature of how we work but the truth is he is pretty darn great.  I’m not…

My Partners in Crime

Sometimes there are things you need to do and you just can’t do them by yourself.  Well, perhaps you can, but you just won’t.  Times like these call for those people you can count on (or force into) going along for the ride.  Today was our first day using our new “sports facility.”  Love It…

My Precious

You might be picturing a golden ring, but I am actually referring to a delightful, golden yellow yoga ball chair.  I have a very hard time with chairs.  They all seem to hurt either my back, my neck, my SI joint or my legs.  But this yoga ball chair is different.  Somehow, it seems to…